Tell the Bees

Archive for May 19th, 2008

Complications: Slow Progress…I Think

Now it’s again a Monday night and Chloe, Mo & I are just back home in Maine from another weekend in Boston.

Lina is still struggling trying to figure out how to eat again. It’s been over 2 weeks since she’s successfully eaten anything more than a tablespoon of jello. She had a small box of Cheerios earlier today. The docs still think it’s the aGVHD that has messed up her GI system – and they told me today that they see slow improvements and are hopeful that Lina will be able to come home at the end of the week.

Lina is still sleeping a lot but doesn’t have the painful cramps of the past 2 weeks. Saturday morning she broke the rules again by getting out of bed; setting off the bed alarm and then falling again – badly scraping her back. They just can’t keep this girl tied down.

Tonight, former-Portland Sea Dogs pitcher Jon Lester pitched a no-hitter for the Boston Red Sox. Two years ago — during Lina’s 1st stem cell transplant at Dana-Farber — Chloe, Mo and I sat in the Green Monster seats at Fenway Park and watched Jon’s major league debut. Two months later he was diagnosed with the same lymphoma that Lina has. And he was treated at Dana-Farber at the same time Lina was being treated there in Aug-Sept 2006 for her recurrence.

Lina reports that the Dana-Farber nurses watched tonight’s game’s final outs and were crying in joy in Tower 4C.