Tell the Bees

Complications: More of the Same

May 15th, 2008 | posted by Craig

Thursday Night –

Lina is still at Brigham & Women’s hospital and will be at least into next week.

I spoke with her transplant doctor tonight and he told me that his team was ‘perplexed’ at why Lina’s condition hasn’t improved all week. She still can’t eat and is very weak. He said that her ‘chemistry’ i.e. blood counts etc had all been improving over the past week – but not her overall condition. They are going to ‘adjust’ her medications and begin other tests to ‘see if there anything else going on’ besides the aGVHD – which they say seems to be under control.

Tomorrow is Chloe’s last day of classes in her senior year, and Moriah has lacrosse games tomorrow and Saturday. We’ll be in Boston probably Saturday-Monday.

Tonight I tried calling and a confused new patient answered Lina’s phone extension. Turns out they had moved her 6 floors down into a new room – from a ‘regular’ room into the Dana-Farber stem cell transplant unit… you’d think they’d let me know. I tried calling the new room; a nurse told me she was in a deep sleep and had slept all day.

I hope they moved all the great art work our good friend Abigail Norman had put up in her old room.

Lina’s new room:
Tower 4C – Room 54
Brigham & Women’s Hospital
75 Francis Street
Boston, MA 02115

New Direct Room Phone #: 617-525-7884

3 comments

3 Comments so far

  1. moie May 17th, 2008 6:45 pm

    Hi all of you,

    First of all, congratulations to Chloe and I hope Moriah won her games..

    And also first, love to all of you.

    I’m of course hopeful that your days with Lina are improving ones and that the artwork moved with her. Every day I look at Lina’s drawings and paintings around me and send good vibes your way.

    I plan to be in New England at the end of June and would love to come visit you then for a bit.

    And Lina, I’ll give you another call real soon.

    Love, Moie

  2. Nadine May 18th, 2008 1:02 am

    Kathy called this afternoon on her way home from Boston and told me how she enjoyed just sitting with Lina and talking. I smuged with the sage from the back yard. I am with you all.

  3. Joyce Read May 26th, 2008 10:28 pm

    Hi Lina,
    Just checking in to say hello and let you know that I’m coming to Portland on the 23rd of June. I want to see you while I am there. I’ll drive to Boston or wherever. I’m sure Craig will let me know where you are.

    I’m looking forward to our visit. I’ll see you soon my friend, and you know the code….24/7.
    Love you,
    Joyce

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