Complications: Slow Progress…I Think
Now it’s again a Monday night and Chloe, Mo & I are just back home in Maine from another weekend in Boston.
Lina is still struggling trying to figure out how to eat again. It’s been over 2 weeks since she’s successfully eaten anything more than a tablespoon of jello. She had a small box of Cheerios earlier today. The docs still think it’s the aGVHD that has messed up her GI system – and they told me today that they see slow improvements and are hopeful that Lina will be able to come home at the end of the week.
Lina is still sleeping a lot but doesn’t have the painful cramps of the past 2 weeks. Saturday morning she broke the rules again by getting out of bed; setting off the bed alarm and then falling again – badly scraping her back. They just can’t keep this girl tied down.
Tonight, former-Portland Sea Dogs pitcher Jon Lester pitched a no-hitter for the Boston Red Sox. Two years ago — during Lina’s 1st stem cell transplant at Dana-Farber — Chloe, Mo and I sat in the Green Monster seats at Fenway Park and watched Jon’s major league debut. Two months later he was diagnosed with the same lymphoma that Lina has. And he was treated at Dana-Farber at the same time Lina was being treated there in Aug-Sept 2006 for her recurrence.
Lina reports that the Dana-Farber nurses watched tonight’s game’s final outs and were crying in joy in Tower 4C.
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Lina, when Travis and Ryan were little Cheerios were their food of choice and it always gave them plenty of energy. Hope they nourish your immune system. We’re sending love to all of you.
Joan and Michael
Well, I guess it’s official! I need to be on the next plane with some donuts, Texas bar-b-que or whatever it takes to put some meat on that skinny tail of yours. I’ve been telling you for years to eat a darn donut!!
Hey, you want to get your juices going, watch the last night of Dancing with the Stars tonight and take a look at those two great looking guys!
Please let me know if there is anything I can do for you and as always, I’m here for you 24/7!
Love you,
Joyce
Lina, I was sort of hoping you might meet Sen. Kennedy, but I guess he was across the way at Mass General. Oh well!
I am thinking of you every day and sending you strength. Your body & soul are working so hard and it is making a difference. I would tell you you shouldn’t be trying to GET UP so much, but (shhhh…) I’d probably be doing the same thing!
Still, be careful so you can come home sooner. Love, Jana
Hi Lina,
Ryer says hi and wants to know when he can visit his friend Lina again soon. We both were really happy to be able to spend time with you a few weeks ago. We look forward to seeing you when you get home.
We are sending love from all of us to you,
Jenn, Chris, Michaela, Devon and your little buddy Ryer
Wonderful to see you and just chat on Saturday, Lina! Keep up the “good work” you’ve been doing. And I remembered about giving you some of Aunties’ peonies. They bloom soon; I think anytime after they can be divided.
love
kathy